Family is truly the epicenter of this foundation. Without the love, support, and generosity of our families, we would not be the organization we are today.
The love we feel from our family also lifts us up. We have met new families on our family support group site and pray for the families around the world afflicted with PAN and dada2. It is not always easy to digest the reality of this disease and the daily strife it causes for families.
Last week, we tapped into social media with another feeling; hope. We know that we are not alone in the rare disease community and we try to lift each other up as a result. Sometimes, when things get dark, you need to find strength in those around you.
A dear family member has been struggling with her own battle and for her birthday this year, she wanted to do something special for Kelsey’s Kaleidoscope, Inc. Inspiration can come when you least expect it. Though she already reached her goal, I invite you to view her fundraiser and want to thank her for spreading awareness and raising funding for our fight.
Love. Hope. Gratitude.
May your birthday wishes come true, Jessica.
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