Rare and Beautiful

Rare is an adjective defined as unusually great or excellent. Rare can also mean few and widely spread apart.

When rare is used to describe a disease, it scares you. You lie awake thinking about it. You constantly worry and you want to do everything you can to foster uniqueness in a way that does not define you as few and widely spread apart, but one that makes you feel unusually great.

Any hospital visit or stay is a reminder of the rare you want to avoid.

But moments shine with hope and a glimmer of the unusually great and extraordinary, too.

This weekend, Kelsey was a shining example of beauty in its rarest form. Confidence and poise surrounded her as she chose to wear her soccer uniform to her special dance with her father to make the quick change required an easy one for her. She simply placed a tutu over the uniform and that was that.

What started out as a joke to save time ended up being her decision.

Rare is simply magnificent sometimes. We are also beyond grateful when a moment celebrates Kelsey’s rare and defines her in all of the right ways.

Be brave. Be rare. Shine on.

Crying to Sleep

As Kelsey begins her eleventh year, emotions and feelings are often a point of discussion. Regulation and coping strategies are important to learn and develop early, and Kelsey does a great job.

We speak often about feelings and try to reflect often together.

Last night, Kelsey did ask if it was normal to cry when she was comfortable in her bed to wet her eyes and ease into sleep. She thanked us for talking through her emotions and giving her new tools to use to handle her feelings. This came up because she continued to tell us that when she was younger, in horrible pain, and taking so much medication, it was easier for her to quietly cry in her bed than it was to talk about how she was feeling.

Though she does not do this anymore, it was certainly hard to hear that it was once a regular evening ritual. The more we listen, the more we learn.

We are grateful to have conversations with our children, but we know that sometimes the feelings below the surface can vary from the way they appear.

Be brave. Be strong. Be honest 🙂

Groundhog Day

January felt like a year within itself. Illness, celebration, isolation, and snow. The dark mornings made it hard to work through at times. Together, we worked through it all.

We continue to hope for a healthy and safe 2022.

February started yesterday with 2.2.22 upon us today and 2-22-22 to follow soon. Milltown Mel passed away hours before Groundhog Day in New Jersey, and we await the outcome of Groundhog Day without him.

If the pandemic has taught us anything as a family, it is resilience. We hope that February 2022 is a great one for you and yours!

Dream Big – Happy 11

Make a wish.
She wishes COVID would come to an end.
What has been your favorite part of the year for you?
I did not get COVID and even though I missed a lot, I stayed healthy.
This year has been a tough one missing out on events, activities, and fun.

We are getting there, we hope, but we know this year has been hard on us all.
Our children dream of better days ahead.
We hope to see this wish come true.
Dream big.
May your dreams always come true, Kelsey.

The world shines brightly with you around.

Wings – 1.22.22 CANCELLED

COVID precautions have brought us to cancel our 1.22.22 Wings event. We will issue a refund to all who purchased and let you know of our new date OR our date for next year.

As always, we appreciate your support!

1.22 ~ Wings Night

Join us on January 22, 2022 for a Philadelphia Wings home game to support Kelsey’s Kaleidescope, Inc.  Tickets are $30 per ticket.  We look forward to seeing you there.

The halftime show will feature our 2027 Shamrocks Lacrosse players and any other friend local lacrosse players.

Tickets can be purchsed through:

Venmo – @NewViewforPAN

Number of Tickets



November 19th – Comedy for a Cure

Comedy for a Cure

Join us for a night of COMEDY and laughter.  Save the Date for November 19, 2021,  7:00 PM – 11:00 PM for our sixth annual Comedy for a Cure!  Featuring a Comedy Line Up sure to keep you laughing!

Comedy for a Cure



Venmo – @NewViewforPAN

PayPal

Ignore the Noise and Play On

Ignore the noise and play on…

Losing and winning are such important life skills. Teaching our children how to win and lose with pride and integrity is always important to our family. As sports return outside this fall, we realize how essential this lesson is post-quarantine.

Parents react sometimes more than our children, and our children are always watching.

Our son recently had the chance to volunteer as a referee to a younger league and while there to watch his first time as a ref, we heard a parent tell him, “The whistle is there to blow, ref.” This line was both a humbling and interesting parental moment.

We warned him ahead of time to stand strong and do his best. “If anyone chirps at me, I will ignore them and play on.”

As we continue to win and lose this year in personal and professional conquests, we celebrate many as well.

Ignore the noise and play on…

Sound advice from our strong and brave son.

*******************

Join us for a night of COMEDY and laughter.  Save the Date for November 19, 2021,  7:00 PM – 11:00 PM for our sixth annual Comedy for a Cure!  Featuring a Comedy Line Up sure to keep you laughing!

Venmo – @NewViewforPAN

PayPal

Ignore the Noise and Play On

Ignore the noise and play on…

Losing and winning are such important life skills. Teaching our children how to win and lose with pride and integrity is always important to our family. As sports return outside this fall, we realize how essential this lesson is post-quarantine.

Parents react sometimes more than our children, and our children are always watching.

Our son recently had the chance to volunteer as a referee to a younger league and while there to watch his first time as a ref, we heard a parent tell him, “The whistle is there to blow, ref.” This line was both a humbling and interesting parental moment.

We warned him ahead of time to stand strong and do his best. “If anyone chirps at me, I will ignore them and play on.”

As we continue to win and lose this year in personal and professional conquests, we celebrate many as well.

Ignore the noise and play on…

Sound advice from our strong and brave son.

*******************

Join us for a night of COMEDY and laughter.  Save the Date for November 19, 2021,  7:00 PM – 11:00 PM for our sixth annual Comedy for a Cure!  Featuring a Comedy Line Up sure to keep you laughing!

Venmo – @NewViewforPAN

PayPal

5th Grade Dreams

As the dawn of a new year approaches, Kelsey returns to her dream of becoming a doctor someday to help and heal others, just like her doctors do for her.

We hope you have a wonderful new year ahead, wherever you are.