Sunday came and smiles faded. The reality of scans, single and team doctor visits, and pathology soon filled our headspace. The team of medical providers we have is world-renowned. Seeing them and providing both a PCR test and saliva test for access was also a first. There is truly no place like The National Institute of Health.
Gratitude over the level of care we have is always there. Being in this facility is truly difficult to explain.
However, there is also something to be said for the way we feel watching Kelsey give ten vials of blood, monitored by ultrasounds and liver scans, and meeting with so many doctors.
All of the worry and concern return when reality stands in front of you.
Kelsey, as always, is brave and strong. As we waited for one imaging study, Kelsey asked, “How many more years do you think I will have to come here to be studied? Aren’t we working on a cure?”
Yes, Kelsey, we are. The timeline is still tentative, but we thank you for helping Kelsey achieve this goal.
Until we reach that goal, thank you 💜
