Tonight, I consider our journey one year ago and where my family sat one year ago, five years ago, seven years ago. I think of the connections made in Bethesda last year at The Inaugural International Conference of the Deficiency of ADA2, discovering other families who face the same journey.
I remember each of you. I remember your stories. I hope that you continue to speak out to raise awareness and help in our fight against orphan diseases, dada2, and PAN. Here are two stories that were shared during that time.
Please join us on November 24, 2017 for our 2nd annual Gala. Tickets can be purchased here.